So I went to the doctor Friday, the whole reason
for even coming to Seattle. I have been dreading this appointment, afraid the
doctor would tell me they need to run more tests before they can figure out
what to do. Things have been steadily getting worse over the last year and a
half. The only thing that has kept me remotely sane the last few months is
running, I hurt sitting on the sofa or lying in bed might as well run. I
celebrated pulling my hamstring because it was something I did by running, not
just my body quitting on me. After fatigue no amount of rest can kick,
migraines, and pains akin to really bad flu, self-inflicted wounds are a
welcome badge of honor.
The appointment did not start well. I got there
late and didn’t check in at the right spot. If I wasn’t a basket case before,
after all that running around the hospital I certainly was. Lots of questions
and going over my history, a little bit of poking and prodding. “’Does this
hurt?’ umm it sure doesn’t feel good.” Then comes the end of the consult where
the doctor tells me he needs to see the results from my kidney biopsy a few
years back. And he needs to get new blood work, because the tests he needs to
see I haven’t had run since 2009. All the while my heart is sinking deeper in
my chest. I just flew 3,000 miles to go home with jack of a solution.
He looked me in the eye and said, “I can fix
you”. It was the most wonderful thing he could say. He need to do more testing
just to know if there are things to keep an eye on for the future. But for what
I am dealing with now, whether it is just Sjogren’s or if I have Lupus too. The
treatment is the same. I am not being sent home empty handed. I am being sent
home with a solution, and the medication is not too bad. Side effects are
pretty minimal and within a month I should be feeling better.
“I can fix you” that is the most beautiful thing
a doctor can say. I cannot express the weight that was lifted off me when he
said that. I do not have to keep fighting with my body, we can become a team,
heart mind and body.
Does this mean I tri? When the race calendar for
Juneau came out for this year I noticed there was a sprint triathlon on it. Not
knowing what that was I looked it up and thought gee that might be doable, and
I want to do it. I posted it on Facebook looking to see if anyone was
interested. Dead silence, nothing. Then one night I was talking to my daughter
and she told me she was training to do it with me. I am thinking holy buckets,
I haven’t started. I don’t even know if I can do this, everyday it feels like
another part of my body is shutting down.
I decided if I could get help from the doctor I
would do it, a way to take my body back from disease. Because let’s face is
call it whatever you like, disorder disease or syndrome. At the end of the day
these autoimmune things are vampires sucking the life out of you. Nephritic
Syndrome and Sjogren’s Syndrome just happen to be the vampires feeding off me.
Well I got the good news, the doctor is getting me some garlic and holy water,
may not have a stake. But I am taking my life back, I am going to be the wife,
mom and woman my family deserves. I am doing a Tri in August. Swimming, Biking
and Running. The run I go nailed. The other two I know how to do, I just need
to get strong enough to do it. And I will. Because I have a doctor that can fix
me.
No comments:
Post a Comment